About the Cystic Fibrosis Foundation
Proceeds from the Swamp Pop Music Festival benefit the Cystic
Fibrosis Foundation. The mission of the Cystic Fibrosis Foundation is to
develop the means to cure and control cystic fibrosis and to improve
the quality of life for those with the disease.
Cystic fibrosis (CF) is a life-threatening genetic disease that occurs
when a child inherits two copies of the defective CF gene - one from
each parent. More than 10 million Americans (one in 31 people) are
symptomless carriers of the gene. Each time two carriers conceive, there
is a 25 percent chance their child will have CF.
The defective CF gene causes the body to produce an abnormally thick,
sticky mucus that clogs the airways and leads to life-threatening lung
infections. The thick CF mucus also obstructs the pancreas, preventing
enzymes from reaching the intestines to digest food.
There are approximately 30,000 children and adults in the United States who have CF.
When the CF Foundation began in 1955, few children with CF lived to
attend elementary school. Today the median age of survival is more than
37 years. Research funded by the CF Foundation is making a real
difference, but precious lives continue to be lost every day.
Besides supporting CF drug discovery and development research, the CF
Foundation helps fund a nationwide network of more than 115 specialty
care centers dedicated to treating people with CF, including Tulane
University Medical Center in New Orleans and LSU Medical Center in
Shreveport; a network of CF research centers at major universities
across the United States; and science grants.
The foundation is one of the most effective and efficient organizations
of its kind. It has received a four-star rating for sound fiscal
management from Charity Navigator, the largest independent charity
evaluator in the US, and is an acredited charity of the Better Business
Bureau's Wise Giving Program.
The only thing that stands in the way of finding a cure is the need for additional funds to support CF research.
You can help us add tomorrows every day for CF patients. Click here to DONATE to the Swamp Pop Music Festival and CF Foundation.
Click here to learn more about the CF Foundation.